Ari Wibowo, a 16-year-old Indonesian boy, has a terrible
skin condition, which makes him sheds his skin like a snake every 41 hours. Scientists
have described his condition as Erythroderma, an inflammatory skin disease also
known as ‘red man syndrome’ that causes the skin over almost the entire body to
become scaly and fall off. The condition has impaired Wibowo’s right eye while
his left must be kept moist with constant drops.
To stop it from it hardening and seizing up, he must
constantly rub his body with moisturiser and soak his body in water every hour.
Ever since he was born, his doctors have been unable to treat him. Ari takes
daily lessons, but has to study alone because people in his community are
scared of his condition.
Mr. Lubis, a photographer documenting the boy’s life, said,
“No schools are willing to accept him because they fear his skin condition
would be contagious to teachers and other students.”
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